The Next couple weeks of Aeva

Aeva had an ultrasound of her stomach done to ensure that everything was working correctly, as well as an xray of her abdomen to also make sure everything was working and looking fine. She passed both tests with flying colors: there is nothing wrong.SO, we decided to take out her feeding tube. Besides, who like to suck on a bottle with a tube down your throat? It cant be comfortable! Taking out her tube is like a sink or swim situation. She needs to keep her urine output up, poop, and eat the correct volume of food to make her team happy.Instantly, her enthusiasm for eating increased, and she was excited and enthusiastic to eat. She wasn't eating what they wanted her to, but she was making a decent start. Each day she got a little better, but she was only gaining a tiny bit.WELL, last night, she decided to stop taking her bottles. Over the weekend, she was on formula only bottles, and now she was back on her 50/50 combination of breastmilk and formula. She doesn't like the taste of it, and was fighting eating it. After convincing her doctor that she doesnt like breastmilk (which was a feat in itself) we decided to lower the ratio of breastmilk to formula, now 1/4 breastmilk to 3/4 formula. Luckily, it did dilute the milk enough that she cant taste it, but reaps the benefits of mommy milk. They also upped the calories of her formula so that each ounce she drinks is 28 calories. (Breastmilk alone is 20 calories per 1 oz.). (She was on 26 cal food previously). With all tis change, she hasn't been eating well today. Currently, she is sleeping, and I hope to feed her in 2-3 hours, and a good amount. Hopefully tomorrow will bring better eating.Her weight gain and growth wasn't "terrible" (says the team) but it coul be better. She still looks healthy, so they are okay with continuing attempting to let her figure this out on her own.She really needs to poop, the poor girl hurts. SHe may eat better once she poops, and also once she gets out of her brace for her hips. Let's hope tomorrow is better.Thank you all for the concern and interest in her well-being!